---
title: "Developing a Culturally Responsive Palliative Care Model for Cook Islands Māori in New Zealand"
id: "pubmed-42764785"
canonical_url: "https://medichelpline.com/clinical-feed/pubmed-42764785"
content_type: "clinical_feed_article"
specialty: "Pharmacology"
source_name: "PubMed / NCBI"
source_url: "https://pubmed.ncbi.nlm.nih.gov/42764785/"
doi: "10.1017/S1478951526103344"
published_at: "2026-09-21T00:00:00.000Z"
evidence_level: "Journal Article"
license: "CC-BY-NC-4.0 / Informational Use"
---
# Developing a Culturally Responsive Palliative Care Model for Cook Islands Māori in New Zealand
## Provenance & Clinical Metadata
- **Canonical URL:** https://medichelpline.com/clinical-feed/pubmed-42764785
- **Specialty:** [Pharmacology](https://medichelpline.com/clinical-feed/pharmacology.md)
- **Primary Source:** PubMed / NCBI
- **Source URL:** [Original Journal Publication](https://pubmed.ncbi.nlm.nih.gov/42764785/)
- **DOI:** [10.1017/S1478951526103344](https://doi.org/10.1017%2FS1478951526103344)
- **Published At:** 2026-09-21T00:00:00.000Z
- **Evidence Rating:** Journal Article
## Executive GIST (TL;DR)
- This qualitative study explored enablers and barriers to accessing **palliative care** for **Cook Islands Māori** living in New Zealand, using community engagement to inform a tailored care model. - Three focus groups with 18 community members gathered perspectives; data collection and analysis were guided by a culturally responsive methodology, **Tivaevae**. - An advisory group provided both cultural and clinical oversight throughout the project. - Participants identified critical moments when families need clear, accessible health information, notably at **prognostic disclosure** and during transfers of caregiving responsibility. - These moments were described as opportunities to equip families with tools to care and plan, enabling choice of preferred place of care and development of family- or community-guided care pathways grounded in Cook Islands Māori culture and faith. - Although improvements in **cultural safety** and cross-cultural communication have occurred, persistent barriers remain for some groups in accessing palliative care services. - The authors emphasize the importance of conceptual models that not only capture beliefs, motivations, and values but that are also usable by both community members and clinicians and that support meaningful, positive outcomes. - Keywords and focus: Cook Islands Māori; Pacific methodology; indigenous; minority health; palliative care.
## Clinical Analysis & Structured Key Points
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Community voices on developing a palliative care model for Cook Islands Māori in New Zealand [Amy Evelyn Henry](https://pubmed.ncbi.nlm.nih.gov/?term=Henry+AE&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [Mayor Pokino](https://pubmed.ncbi.nlm.nih.gov/?term=Pokino+M&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [El-Shadan Tautolo](https://pubmed.ncbi.nlm.nih.gov/?term=Tautolo+ES&cauthor_id=42764785)[ 2 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-2 "Centre for Pacific Health & Development Research, Auckland University of Technology, Auckland, New Zealand."), [Jan Dewar](https://pubmed.ncbi.nlm.nih.gov/?term=Dewar+J&cauthor_id=42764785)[ 3 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-3 "School of Health, Victoria University of Wellington, Wellington, New Zealand."), [Josephine Herman](https://pubmed.ncbi.nlm.nih.gov/?term=Herman+J&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [Ioana Mulipola](https://pubmed.ncbi.nlm.nih.gov/?term=Mulipola+I&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#full-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.") Affiliations Expand ### Affiliations * 1 Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand. * 2 Centre for Pacific Health & Development Research, Auckland University of Technology, Auckland, New Zealand. * 3 School of Health, Victoria University of Wellington, Wellington, New Zealand. * PMID: **42764785** * DOI: [ 10.1017/S1478951526103344 ](https://doi.org/10.1017/s1478951526103344) Item in Clipboard # "The doctors will tell you things that they understand - Not what we understand." Community voices on developing a palliative care model for Cook Islands Māori in New Zealand Amy Evelyn Henry et al. Palliat Support Care. 2026. Show details Display options Display options Format Abstract PubMed PMID Palliat Support Care Actions * [ Search in PubMed ](https://pubmed.ncbi.nlm.nih.gov/?term=%22Palliat+Support+Care%22%5Bjour%5D&sort=date&sort_order=desc) * [ Search in NLM Catalog ](https://www.ncbi.nlm.nih.gov/nlmcatalog?term=%22Palliat+Support+Care%22%5BTitle+Abbreviation%5D) * [ Add to Search ](https://pubmed.ncbi.nlm.nih.gov/42764785/) . 2026 Sep 21:24:e225. doi: 10.1017/S1478951526103344. ### Authors [Amy Evelyn Henry](https://pubmed.ncbi.nlm.nih.gov/?term=Henry+AE&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [Mayor Pokino](https://pubmed.ncbi.nlm.nih.gov/?term=Pokino+M&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [El-Shadan Tautolo](https://pubmed.ncbi.nlm.nih.gov/?term=Tautolo+ES&cauthor_id=42764785)[ 2 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-2 "Centre for Pacific Health & Development Research, Auckland University of Technology, Auckland, New Zealand."), [Jan Dewar](https://pubmed.ncbi.nlm.nih.gov/?term=Dewar+J&cauthor_id=42764785)[ 3 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-3 "School of Health, Victoria University of Wellington, Wellington, New Zealand."), [Josephine Herman](https://pubmed.ncbi.nlm.nih.gov/?term=Herman+J&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand."), [Ioana Mulipola](https://pubmed.ncbi.nlm.nih.gov/?term=Mulipola+I&cauthor_id=42764785)[ 1 ](https://pubmed.ncbi.nlm.nih.gov/42764785/#short-view-affiliation-1 "Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.") ### Affiliations * 1 Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand. * 2 Centre for Pacific Health & Development Research, Auckland University of Technology, Auckland, New Zealand. * 3 School of Health, Victoria University of Wellington, Wellington, New Zealand. * PMID: **42764785** * DOI: [ 10.1017/S1478951526103344 ](https://doi.org/10.1017/s1478951526103344) Item in Clipboard Cite Display options Display options Format Abstract PubMed PMID ## Abstract **Objectives:** This study aimed to identify the enablers and barriers to accessing primary and specialist palliative care services for Cook Islands Māori in New Zealand, and to collaborate with community members to explore the practical application of a tailored palliative care model. **Methods:** Three focus group interviews were held with Cook Islands Māori community members (_n_ = 18). A culturally responsive research methodology, Tivaevae, was used to guide data collection and analysis. An advisory group was established to provide cultural and clinical oversight. **Results:** This study presents the findings from the first phase of model validation, exploring Cook Islands Māori peoples' use of palliative care services in New Zealand. The study identified key moments when families needed clear and accessible health information, during prognostic disclosure and during moments of responsibility transfer. These key moments provide opportunities for families to develop the tools to care and plan. This, in turn, enables family members to choose their preferred place of care and to develop family or community-guided care pathways based on Cook Islands Māori culture and faith. **Significance of results:** While improvements in cultural safety and cross-cultural communication have been made, there are still groups who experience barriers to accessing palliative care. Identifying key moments when care can be enhanced is key to developing systems that can deliver culturally responsive care for minority groups. Conceptual models show the beliefs, motivations, and values that guide care. However, models must be usable for both community members and clinicians, and critically, must support meaningful and positive outcomes. **Keywords:** Cook Islands Māori; Pacific methodology; indigenous; minority health; palliative care. 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