Caregivers confidence in and preferences for reporting rehabilitation service use following paediatric traumatic brain injury: a qualitative study for measure development

Objectives To evaluate caregivers' confidence in accurately reporting rehabilitation service use for paediatric traumatic brain injury (TBI) and to determine their preferences for measure scope, granularity and administration. Design This qualitative descriptive study conducted remote, semistructured individual interviews with caregivers to examine their confidence in and preferences for reporting rehabilitation service use to inform measure development.

The interview guide was refined through pilot interviews (n=2) excluded from analysis. Subsequent interviews were transcribed verbatim and analysed using thematic analysis with hybrid deductive-inductive coding.

Setting Health Insurance Portability and Accountability Act (HIPAA)-compliant videoconference platform. Participants Participants were recruited using maximum variation sampling to promote diversity across factors associated with rehabilitation service use.

14 caregivers met the following inclusion criteria and consented to participate: primary caregiver of a child aged 0 - 18 years who sustained a TBI requiring hospitalisation within the past 3 years; caregiver communicates in English. Sampling continued until data saturation was reached.