Up to three-quarters of people with haemophilia worldwide are estimated to be undiagnosed, with an even bigger gap predicted for other bleeding disorders. This astonishing statistic underlies the focus of this year's World Haemophilia Day, on April 17, on diagnosis: a first step to care.
Even when people are diagnosed, there are substantial inequalities in access to treatment and bleeding prophylaxis in many parts of the world. 2026 could mark a crucial year for turning the tide on these issues, with the recent approval of a World Health Assembly (WHA) resolution on Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders, which will be presented at the 79th WHA on May 18–23, 2026, for final adoption.