Development and validation of the Manipal Interstitial Lung Disease Education Booklet (MILD EduB) for individuals with interstitial lung disease

14 Jul 20264 min read0 viewsJournal Feed

GIST (Key Takeaways)

by Revati Amin, Aswini Kumar Mohapatra, G. Arun Maiya, Vishak Acharya, Shivashankara Kaniyoor Nagri, Suresh Sukumar, Winniecia Dkhar, Anup Bhat, Mukesh Kumar Sinha, Marita T. Dale, Jennifer A.
Alison, K. Vaishali In India, Interstitial Lung Disease (ILD) is a significant healthcare burden. Poor outcomes are caused by delayed diagnosis and insufficient patient education (PE).
In this context, the Manipal Interstitial Lung Disease Educational Booklet (MILD EduB), a culturally relevant resource for individuals with ILD in India, was developed and validated. The booklet was developed in four stages: (1) a scoping review to identify important educational themes; (2) development of a draft booklet shared with experts for review and feedback; (3) validation of the booklet by healthcare professionals using the content validity index (CVI); and (4) face validation by individuals with ILD. The initial scale-level CVI (S-CVI/Ave) was 0.79, which improved to 1.0 following modifications, indicating good expert consensus via the healthcare professionals.
Face validation by individuals with ILD (n = 10) using a 4-point Likert scale demonstrated 100% agreement for readability, relevance, and design.

Clinical Editorial

PLOS ONE (Medicine) published a clinical update in Research Highlights on 14 Jul 2026.

The item focuses on Development and validation of the Manipal Interstitial Lung Disease Education Booklet (MILD EduB) for individuals with interstitial lung disease.

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